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Katya Siddall-Cipolla's avatar

This part “recognize the potential for solidarity in the fact that we all live under a system that requires our illness to function” really resonated with me. Racism, ableism, hatred of unhoused and poor people - the way that our system persists is by pitting people who are treated as less than against each other. If we are busy arguing about who deserves more, there’s no energy left to work on dismantling systems that hurt all of us.

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Tristan's avatar

I believe the idea that there "isn't enough to go around" is perpetuated by the tendency of activists to normalize the most palatable members of a marginalized group, then pat themselves on the back and think they've solved the problem, throwing everyone else under the bus.

I have personal experience of the impacts of this, not in regards to autism, but in regards to an incurable, under-researched chronic disease I have. Said disease is quite common, but highly variable in functional impact, much like autism. 99% of advocacy fails to raise awareness of the 25% of patients for which it is life threatening. The consequences are absolutely devastating. People are dying every day in horrific suffering and nobody is even aware it's happening unless they're already a part of that terminally ill community.

In terms of advocacy, there really ISN'T enough of it to go around, and the most stigmatized members of a community are the ones who lose out.

If every autistic person advocated for the needs of "profoundly autistic" people as well as their own - what a different world it would be. But most people simply don't have the energy or motivation to advocate for needs they perceive as unrelated to their own.

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